Well... that just sucks. Still, appeals will follow. One thing about it, we aren't going down without a fight! Nothing can be considered accessible if it is not affordable for the majority of those needing the medications.
Would love to read that ruling. I am concerned this will push people to the black market and mixing in their basements. This is deeply concerning. What if anything can we do as a community? Time to organize and protest?
What can we do as a community? Write our Congressional reps? There has got to be something to do - an online petition to FDA. Ideas?
I cannot imagine where I would be today without compounding - it is finally covered by my insurance with a co-pay that is equal to my compounding cost but so many are not lucky like that.
A place to start is to contact your Congressional delegation with a phone call - phone calls work best. Letters are good but if we can get lots of phone calls going to our elected folks even better. 5Calls.org is a good app or website that makes it easy to do. And Bernie Sanders office would be a good one to contact since he has been supportive. Given all the budget issues and fights happening in DC not sure if we will get heard but taking action sure helps.
Also check out what Dave Knapp wrote today about the NOOM CEO proposal - sounds like an effort to get behind. Something to do with allowing 503B pharmacies to produce compounded if costs here are higher than costs in other nations.
For now we have to get the word out what has been lost - post on social media and urge folks to contact their US Representatives and Senators to keep compounding alive. Appeal to Eli Lilly to release all the vials at all dosage levels, lower the cost and make the vials available to pharmacies in order to lower the costs. The pens are just too expensive.
Obesity is an epidemic and it drives up health care costs for so many other diseases and it kills.
Dave had a great message to send to Lilly yesterday on making vials available at all dosage levels. We need to applaud Lilly for the vials now we need to ask for even lower prices and all level of dosage available. They can do the right thing and make lots of money too. I don’t begrudge them a profit. Also they would be doing something of a great humanitarian service.
Enough said - let’s call out Congressional folks and encourage others - it is a place to start. Let’s do it - we can even be pests - call every day and get others to do the same.
I agree with you. They tell us compounding is not good for us, but they are pushing us to the black market. Most of us who can’t afford anything but compound, and have gone into debt … we will be desperate. They don’t care about us! They know it works and we can’t have it!! What is wrong with these people??
Oh Rhonda: I agree. The health care system is broken, it wasn’t designed too well to promote wellness and the GLP-1 have arrived so quickly like a storm that it wasn’t build to respond such a huge change but the drug companies are doing what they do well - develop am amazing drug and then re-coup their R&D, make money until named brand goes generic. BUT this time the new drug treats a national epidemic that is a public health issue. It requires a national federal response and these days the system is rejecting those ideas. Dang, we need a federal response to save lives. Or we need to organize a union of the overweight - time to lobby Congress as a big group.
Well... that just sucks. Still, appeals will follow. One thing about it, we aren't going down without a fight! Nothing can be considered accessible if it is not affordable for the majority of those needing the medications.
Stunning? Were you expecting it to go the other way?
After the shenanigans the judge called Lilly and FDA on last week, yes. Prior to, heck no
ahhh...I was on vacation last week -- still catching up
Hope it was a good one!
👎🏼👎🏼👎🏼👎🏼👎🏼👎🏼👎🏼👎🏼
Would love to read that ruling. I am concerned this will push people to the black market and mixing in their basements. This is deeply concerning. What if anything can we do as a community? Time to organize and protest?
It 100% will and already has pushed people to the black market. Sad.
What can we do as a community? Write our Congressional reps? There has got to be something to do - an online petition to FDA. Ideas?
I cannot imagine where I would be today without compounding - it is finally covered by my insurance with a co-pay that is equal to my compounding cost but so many are not lucky like that.
I want to help them.
A place to start is to contact your Congressional delegation with a phone call - phone calls work best. Letters are good but if we can get lots of phone calls going to our elected folks even better. 5Calls.org is a good app or website that makes it easy to do. And Bernie Sanders office would be a good one to contact since he has been supportive. Given all the budget issues and fights happening in DC not sure if we will get heard but taking action sure helps.
Also check out what Dave Knapp wrote today about the NOOM CEO proposal - sounds like an effort to get behind. Something to do with allowing 503B pharmacies to produce compounded if costs here are higher than costs in other nations.
For now we have to get the word out what has been lost - post on social media and urge folks to contact their US Representatives and Senators to keep compounding alive. Appeal to Eli Lilly to release all the vials at all dosage levels, lower the cost and make the vials available to pharmacies in order to lower the costs. The pens are just too expensive.
Obesity is an epidemic and it drives up health care costs for so many other diseases and it kills.
Dave had a great message to send to Lilly yesterday on making vials available at all dosage levels. We need to applaud Lilly for the vials now we need to ask for even lower prices and all level of dosage available. They can do the right thing and make lots of money too. I don’t begrudge them a profit. Also they would be doing something of a great humanitarian service.
Enough said - let’s call out Congressional folks and encourage others - it is a place to start. Let’s do it - we can even be pests - call every day and get others to do the same.
Thanks for sharing!
I agree with you. They tell us compounding is not good for us, but they are pushing us to the black market. Most of us who can’t afford anything but compound, and have gone into debt … we will be desperate. They don’t care about us! They know it works and we can’t have it!! What is wrong with these people??
Oh Rhonda: I agree. The health care system is broken, it wasn’t designed too well to promote wellness and the GLP-1 have arrived so quickly like a storm that it wasn’t build to respond such a huge change but the drug companies are doing what they do well - develop am amazing drug and then re-coup their R&D, make money until named brand goes generic. BUT this time the new drug treats a national epidemic that is a public health issue. It requires a national federal response and these days the system is rejecting those ideas. Dang, we need a federal response to save lives. Or we need to organize a union of the overweight - time to lobby Congress as a big group.
Stephanie what a great post! You are so correct. I wish I knew where to start or who to write to first.
Wow, I hope they appeal the decision. But knowing this information is not surprising.
503 a are still able to compound?
Ugh!
WOW 😦
😬